Tuesday, September 3, 2013

Back to School with ASD

(Note: This post began as a message to students with Autism returning to school.  However, the focus shifted towards helping parents of those students guide their students through the process of being a high school student.  This post could also be helpful to parents of ANY student starting high school for the first time.)


Ahhhhh back to school.   Vacations have ended.  Swimsuits have been swapped for jeans and fresh new tees, flip flops with the latest sneakers.   Pencils and calculators have replaced video games, sleeping in with rising up before the sun.   Time for teachers, friends old and new, and homework. The excitement! The anxiety!  The stress!  Oh my! While back to school is exciting and fun for most, it can be an excruciating experience for those on the Spectrum. 


Unwritten Rules
Unwritten rules are perhaps the greatest source of angst for students on the Spectrum.    These are rules that are not stated (or are stated in a manner that is not clearly defined).  For example, here at RRHS we have a Dragon emblem on the floor in the Student Center.  The unwritten rule is that one must not step on the Dragon, and if one does, he or she must get down on his or her knees and kiss the Dragon.   If a student is unaware of this rule, he or she may face great social consequences from peers.  

It is imperative that we make these rules clear, especially to those entering a new campus with new unwritten rules.  Often times finding a peer who has been on the campus is helpful, as well as new student orientations.  When new student orientations are done in smaller groups, they are less intimidating and students are able to learn more. 


Unwritten Procedures
In elementary school and middle school, students were guided through procedures and routines directly.   These procedures include where to go before school, how to go about getting breakfast and lunch, how to get to the bus, finding one’s way around a big campus, obtaining accommodations, visiting the counselor, finding one’s case manager for special education services, knowing where the restrooms are, knowing the procedures for using the restroom for each class, which side of the hallway to walk on, turning in work, etc.   In high school, these routines and procedures are not always clearly stated and can vary from teacher to teacher. 

Some of these procedures may seem minor, yet their impact on a student’s school day and academic performance can be huge.  Take for example, turning in work.   The unwritten procedure may be to pass in the work at the end of the class period.  However, if a student is engrossed in an assignment, he or she may not notice the cue to pass in work.   Instead, the completed assignment gets tucked away in a folder.   Instead of getting credit for his or her work, the student gets a “Missing”, which accounts for a “0” in the grade book.   The student did not EARN a grade of “0”; he or she was simply unaware of the procedure for turning in the work.  

It is important to clarify the procedures for our kiddos on the Spectrum.   Taking students through a new student orientation can be helpful.   In addition, having students list their worrisome questions and finding a person who can answer them before the first day of school can help ease some of the worries and frustrations that often come with the first few days/weeks of school.  Asking teachers to clarify in writing their procedures for turning in work (and what to do if work is missed) can be helpful, as well as teaching students on the Spectrum to advocate for themselves by turning in completed work unprompted and directly to the teacher.   

Students on the Spectrum CRAVE and live by routine.   In high school, there are loosely defined routines.   We must teach our students how to expand upon these existing structures and create their own routines and positive academic habits at school.    Once our students settle into these routines, much of the anxiety is removed and success can blossom. 


Academic Expectations
When students first begin high school, they tend to be shocked at the amount of homework and the level of difficulty they are expected to face.  Gone are the days where teachers hover and prompt.  Students are expected to take responsibility for their own learning.   I find that most of the time our students are academically capable of being successful in high school coursework, but that there are barriers associated with Autism that hinder academic performance.   Organization skills, relationships with teachers/teaching styles, inability to self-advocate, work load, and the level of academic rigor associated with high school courses are enough to overwhelm any student. 

Disorganization murders student success.   Not being able to find completed (and uncompleted) assignments, forgetting homework has been assigned, not remembering due dates, not being able to desegregate a multi-step project, leaving important items at home or in a parents’ car, and misplacing important papers plague our students. 

To compensate for this, each of my students is required to use the same organizational system.   The system starts with a binder.  A three-ring, tough binder, preferably one that zips closed (especially for the students with sensory issues who have trouble knowing how hard they are being on their materials).   The student is then required to have one folder per class period in their binder.  Additionally, the there must be a separate folder for notebook paper and one for “My Stuff”.  

There is reasoning behind the madness of my binder system.  Our students rarely take the time to open the rings of a binder.  It is time consuming, often requires the use of a hole punch, and requires fine motor skills.   Therefore, having the rings simply to contain folders rather than to contain important papers and supplies just makes sense.   Kids are more likely to rip notebook paper out of the rings rather than to open them and remove the paper carefully, adding to the chaos of the paper nest that grows over the course of the year.   Therefore, containing paper within a folder where students can reach in and grab a sheet or two is more convenient and more likely to be used appropriately.   Having one folder per class creates a “home” for everything related to that subject, reducing time spent searching for assignments and notes.   Giving the student a folder labeled “My Stuff” allows a space for drawing and personal notes.  I never look in this folder, as I respect that everyone likes some privacy. 

The other part of my system includes a daily planner or assignment notebook.  I have taken care to create calendars that coordinate with our grading periods, list the block schedule (A/B days), list our various bell schedules (here at RRHS we have 3!) and list holidays and other important events.   Behind each calendar are daily planner sheets, where students must list assignments and activities for each class period. 

Just giving our students these tools doesn’t fix the problem of disorganization.  As with any skill, organization must be directly taught and practiced in order for it to become second nature.   When I provide this system to a student whom I am responsible for in the grade book, in order to hold them accountable for practicing the skill I grade each of the components weekly.  However, I do not always have this option.  In these instances, systems must be set in place to hold the students accountable until they become a meaningful, habitual task.   My Godson is a freshman at a nearby school, and I have set him up with the binder and planner system.  To keep him accountable, I check his materials weekly and provide him with a monetary reward that can be redeemed at the end of the month.   So far, so good (cross fingers). 

Having numerous teachers with various teaching styles can be extremely overwhelming.   Each teacher has their own unique expectations regarding student performance, their own personality that will more often than not either fit like a glove or clash violently with that of the student.    The student who struggles to relate to others and think like others will have a difficult time forming respectful and nurturing relationships with individual teachers.   Student-teacher relationships are important in that they affect a student’s ability to communicate with said teacher.   This leads to anxiety and contributes to difficulties students have in advocating for themselves in the classroom. 

Struggles with self-advocacy can hinder a student’s ability to ask for help, attend tutorials, retake tests and quizzes, and ask for accommodations when needed.   Students are often afraid to ask for help because they feel they will be appear in the eyes of others  “dumb”, “stupid”, “you should have been paying attention” or “you are incapable of knowing this on your own.”   This is especially true for populations of students who are otherwise extremely intelligent.    In addition to teacher and parent expectations, the student has high expectations of themselves.   Therefore, not knowing how to do something is not an option, and so asking for help is out of the question.  

We must directly teach our students that EVERYONE needs assistance in life, and that EVERYONE, even Neurotypical adults, must eventually advocate for themselves and ask for assistance.  NOT KNOWING IS OK.  It is natural.   We must first make examples of ourselves.  We must demonstrate in our ordinary lives that we need help.  Ask for assistance finding something at the grocery store, ask for help in loading a heavy item in your car, or ask to be seated in a quieter area of a restaurant.  People are willing to make accommodations, but we must ASK.   Have your child ASK for these things as well.  Give them the opportunity to ask for help.  

We have to show our students what it means to communicate with teachers.  We must show them what it looks like, feels like, and sounds like to ask for accommodations.  We must teach them HOW to USE tutorials.  Often our students do not know what tutorials are even for, or they do not know the appropriate questions to ask.  A good place to start is by having students attend tutorials mandatorily for a trial period.  Teach them to communicate with the teacher about their needs.  If the student is unaware of what his/her specific trouble area is, teach them to state “I am not sure where my struggle is in science but I know I do not get it.  Can you help me find what I need to work on?”   Sometimes having a script (even for our most “social” students) can reduce the amount of stress tremendously!

Work load and academic rigor.  That statement alone is enough to make me cringe.   I can’t imagine being a high school student in today’s world of technology and rigorous expectations.  We ask a lot of our students these days, but it is necessary in today’s world of innovation and competition.  We must teach our students how to handle this work load appropriately.  We must teach them to EXPAND upon what they have learned in the classroom and create INDEPENDENT LEARNERS.   This means that when our students say they have nothing to do, we directly teach them that there is always something they can do to continue their learning. 

Learning is a process.  There is no end.  Tests and other assessments are measurements of where we are NOW.   They are not measurements of our final abilities.   Every failed test is an opportunity to pinpoint areas of concern, as well as areas of strength.   We have to show our kiddos and encourage them to dig into the areas in which they struggle.   Our kids are so used to being “the best” at things.  Failure can be devastating, and for many students can really affect their already fragile self-worth.   We must foster their EFFORTS, build upon their STRENGTHS, and teach them that failure is an acceptable part of the LEARNING PROCESS when used as a tool to facilitate bettering oneself.    


Social Life
Generally speaking, kids with Autism Spectrum Disorders WANT to fit in and have friends.   While it is true that many do prefer to be alone, at the very least stands the desire to be socially accepted. 

High school does offer more social opportunities than one can imagine.   A variety of clubs and extracurricular activities exist within our campus community.   There is something for everyone, from art to sports to even zombies!   I encourage our students to find something they are interested in and take advantage of the many opportunities on campus.  Joining clubs tends to lead to relationships with peers that have similar interests. 

It seems as though for every opportunity for a student to create new friendships, there is also an opportunity for a bully to make clear one’s differences.   Bullying is a big issue in our schools these days, and children with ASD tend to be easier targets.   Buses, cafeterias, hallways, restrooms, the internet, and even supervised classrooms are Petri dishes that fester with gossip and meanness.   Kids are mean.  And bullying happens.  Kids try to fit in, to be cool, to stand out, and to increase their self-worth, and unfortunately the way they know to do this is by demeaning others and making others feel inferior.  I would like to eradicate bullying altogether.  But the fact is, I am human and as a teacher I can only hear and see so much, therefore I can only stop and rectify what I see, hear, and what is reported to me.  However, I can and do teach my students how to recognize and report bullying, and how to handle themselves appropriately when bullying happens to them.    I can be a presence in the hallways, show both bullies and victims alike that I am here and I will not tolerate it.  

What we must do for our students is teach them to get involved.   The more involved students are, the more peer-relationships and teacher-relationships they develop, the more support they have in their school day.    We must also help foster self-worth, self-advocacy, and how to recognize and report bullying.   Often when we teach our kids to advocate for OTHERS, they are less likely to become a victim themselves. 


Summary
Back to school time can be a fun, exciting, stressful, and wonderful time of year.  If our students are properly equipped, our parents have the right information, and our teachers are given opportunities to learn about ASD, it can also be a successful time of year! 

Notice I said “we must teach our students” repeatedly throughout this post.   Our kiddos are not born with these innate abilities.  Neither were we.  We learned them.  Some of us learned more easily and naturally than others.  And although it may seem as if our kiddos “get it”, often times they don’t “get it” on a meaningful and useful level.   We must face the facts that times have changed and our students will learn differently than we did.  It is not about coddling or hand-holding.  It is about making clear expectations and procedures that are muddied with the sands of the ever-changing academic system. 

Things We Must TEACH Our Kids About High School
·       The specific “unwritten rules” of their campus
·       The specific “unwritten” or “unclear” procedures for each classroom
o   Turning in work
o   Asking to go to the restroom
o   Getting accommodations
o   Introduce them to the main players in their education (counselor, AP, case manager, etc)
o   How to create their own routine within the school day
·       How to handle the academic expectations of how school
o   Using systems such as binders and planners to keep themselves organized
o   DIRECTLY TEACHING students how to use said systems
o   That EVERYONE needs help sometimes
o   How to advocate for themselves (asking for help, accommodations, etc)
o   How to RECOGNIZE when they need to advocate for themselves
o   How to forge positive relationships with their teachers
o   How to EXPAND upon their learning
o   That learning is a PROCESS
·       How to handle the various social situations in a high school community
o   Encourage them get involved by joining clubs and programs that cover topics of interest
o   To make friends that share interests and values
o   To recognize and report unwanted behaviors, including bullying and harassment

o   Foster their self-worth and emotional well-being 

Thursday, May 23, 2013

Senior Spotlight: Rachel Criddle

Nice – Silly – Funny – Independent – Respectful – Creative – Smart


Today’s Senior Spotlight features student Rachel Criddle.    Before attending Round Rock High School, Rachel attended Chisholm Trail Middle School and Cook Elementary School. 

High School Experience
As a student at RRHS, Rachel was a member of the Pokémon Fan Club, and her hobbies include playing video games, drawing cartoons in her sketchbook, listening to music, watching internet videos, reading books, writing stories, and riding her bike.   In addition, Rachel has volunteered at her community library and has served as a library aid at RRHS. 
When she was just beginning high school as a freshman, Rachel was anxious to face new challenges, and she was most excited about making new friends.  Now, as she prepares to graduate, Rachel is apprehensive but eager to begin college, and is enthusiastic about graduation.   She says her greatest accomplishment in high school was obtaining a part time job at McDonalds. 
Rachel’s favorite subject in school is Art because she loves to draw and paint.  Her least-preferred subject was Economics, because although she is up to any challenge, Rachel found this class to be super-tough!  The most stressful part of being a high school student is lots of studying and hard tests.  She would advise freshmen entering high school for the first time to have fun, make new friends, and to be a good student.  Her advice for next years’ senior class is to “work hard, reach your goals, and never give up!”  When asked if she could change anything about her high school experience, Rachel said she would have liked to have been a little more organized, as she tends to over-stuff her binder. 

Future
Rachel has been working at McDonalds for quite some time now, and she really enjoys it.  She plans to continue to work there over the summer, and someday she wants to go to ACC and work at Seton Medical Center.   Rachel wants to be a responsible grown woman living independently in an apartment in Austin.   She aspires to write lots of children’s books and work at a public library or small book store.   For enjoyment, she wants to spend time with friends and go bowling or to the movies.  She hopes to be able to visit her two older brothers as well. 

Random
If Rachel could start a food fight, her weapon of choice would be spaghetti and meatballs.  Reading books by author Dave Pilkey inspires her to become a writer.  Her hero is her family because they have taught her right from wrong and have always been there for her.   Three things Rachel wants to do in her lifetime are go to college, learn how to be responsible for her own finances, and write books.   In addition to being artistic, being an avid reader, and being intelligent, Rachel says that being kind to others and taking responsibility for her actions are just a few of her best qualities.

Ms. D’s Turn to Brag
Rachel always stands up for what she believes to be right, even when others disagree with her.   She shows tenacity and fierceness when it comes to getting things done, and she perseveres through every challenge that she is faced with.  I am extremely proud to say that I have been Rachel’s teacher, and I have been honored to watch her grow into the young woman she is today.  Rachel will undoubtedly go on to serve our community with her welcoming smiles and contagious laughter.  Rachel, thanks so much for brining sunshine to my mornings!  I know that you will continue to light up the world!  

Wednesday, May 22, 2013

Senior Spotlight: Ryan Spicer


Quirky – Amiable – Observant – Reserved – Creative – Free – Humble

Today’s Senior Spotlight features student Ryan Spicer.    Ryan has attended RRHS for four years.  Prior to that, Ryan attended Parkcrest Middle School and Windemere Elementary School, both in Pflugerville. 

High School Experience
While at RRHS, Ryan was a member of the French Club and Thespians.  Outside of school he was active in the Austin Bronies Club.   Ryan enjoys playing video games, making art, watching television, and browsing the internet.  
Before high school, Ryan’s biggest fears of coming in as a freshman were not having friends, not gaining any meaningful changes to his life, and having too much homework.   At the same, making friends was one of things he looked forward to the most.   Leaving high school, Ryan is most worried about having to “start over” as a freshman in college.  He is excited about making more friends, and making the friends he has today proud of him.   His biggest accomplishment in high school is passing all of his classes and making great friends. 
Ryan’s favorite subjects in high school were art and animation.  He enjoyed those classes because he is an artist and he enjoyed spending time with peers who shared the same interests.  His least favorite subject was Personal Fitness because he is not very athletic.   The most stressful part of school according to Ryan has been attending.  He says once you get that part over with, the rest is fairly easy.   If he were to give advice to a freshman entering high school, he would recommend they get their credits done and choose their own classes.   For seniors, he would recommend that they not give too much attention to detail, but to get their work done and move on.   If he could change anything about his high school experience, Ryan would have not taken AP classes his freshman year.   He had to drop out of those classes because the workload was tough for a freshman with Asperger’s Syndrome.  Ryan would have instead liked to have worked his way up to AP classes from regular classes, once he got used to the high school experience. 


Future
After graduation, Ryan plans to go to Inks Lake with friends, stay in touch, and take a long break.  He plans to go to ACC to get his basics, and then transfer to either UT Austin or the Art Institute of Austin.   Ryan wants to be a professional game developer, and he wants to live either in the Round Rock area or in Burnet, TX.   For fun he wants to continue playing games, social networking, and he wants to explore new places. 

Random
If Ryan was in a food fight, his weapon of choice would be a kumquat, because it’s fun to say.  The color green describes him best, because it’s not bombastic and it’s very common in nature.   When asked what inspires him, Ryan answered “Underdog moves, like Dodgeball.  I am a humble guy yearning for greatness.”  His hero is a friend of his, whose feats of artistic and academic success Ryan finds inspiring, and he aspires to have similar successes in life.   Three things Ryan hopes to do in his lifetime are earning world-wide recognition as an artist, getting married, and making lots of money.   He says his best qualities are that he is artistic, creative, thoughtful, friendly, and open-minded.  Ryan is most proud of himself for just getting through the day, every day. 

Ms. D’s Turn to Brag
Expressing how proud I am of Ryan will be difficult to proclaim, as I cannot conceive that strong enough words truly exist.    I have had the pleasure of teaching and advising Ryan since his freshman year.    I am thoroughly impressed with how outgoing and affable he has become.  For the longest time it was a challenge to get him to crack a smile.  Now, Ryan uses his friendly and welcoming personality to put a smile on the faces of those around him.   He has developed strong, heartfelt relationships with his peers, Autistic and Neurotypical alike.   He recognizes the uniqueness and value in each individual and wholly embraces their differences.    Ryan has become an incredible advocate for himself and his peers.   A tad bit of a perfectionist, it used to be extremely difficult for Ryan to complete a simple writing assignment.  Now, given a bit of time, he writes the most amazing, in-depth, and personable responses and essays.  Ryan has demonstrated tremendous growth in the areas of self-expression and interpersonal skills, more so than any other student I have witnessed in my teaching career.  He has begun to recognize and embrace his own potential.  Ryno, I know you will continue to inspire those around you, because you have been a true inspiration to me!  (Bro-fist).  

Wednesday, May 15, 2013

Senior Spotlight: William Hornyak


Friendly – Intelligent – Kind – Caring – Loyal – Hardworking – Sensitive

In this episode of Senior Spotlight, I would like to feature student William Hornyak.  William has attended RRHS for 4 years, and attended Chisholm Trail Middle School and Deepwood Elementary School here in Round Rock ISD. 


High School Experience
His freshman year, William was a member of the Pokemon Club, and this past year he has been active in both the Stock Market Club and the Japanese Culture Club here at RRHS.  Outside of school William’s interests are playing video games and rock collecting.   Coming into high school, William’s greatest concern was that he did not know what to expect.   As he eagerly anticipates graduation, he has the same apprehensions regarding the “real world”.   Entering high school, William was most eager about making new friends, and as graduation nears he is most enthusiastic about securing a job.  




William’s favorite subject has been science, by reason that he gets to learn something new and exciting every day, and that he has a passion for Biology and animals.  His least preferred subject was English, because he has a difficult time with the laborious task of writing.   William says the most taxing part of high school has been keeping up with homework and assignments.  If he were to give advice to freshmen entering high school for the first time, it would be to keep their grades up on account that their parents are less likely to fuss at them about it.  The advice William would give to next years’ seniors would be to work hard first, and then party.  


Some Fun Stuff
If he could start a food fight (and get away with it, of course), William’s weapon of choice would be ketchup, because it’s a mess!   His heroes are his parents, because they have raised him to be himself.   The color that best describes him is orange, and the strangest thing he has ever eaten was dried seaweed (he didn’t like it and it had a fishy taste). 



Future
After graduation William plans to attend ACC.   His ambition is to someday have a job caring for animals.   William would like to have a family someday and plans on living in Texas, although he hasn’t quite decided where at this time.











Ms. D’s Turn to Brag
What makes me the most proud of William is his metamorphosis from a young boy into the mature young man he is today.   In his earlier high school career, William struggled to interact with his peers and teachers.   It was hard for him to define where he “fit” within the RRHS community, and he wasn’t quite sure how to stand up or speak up for himself.   William battled change and was rigid in his thinking and actions.   These were not weaknesses of William, rather they were challenges that he faced as a student with Asperger’s Syndrome.  Now, William has grown to be a true leader within the classroom and the school community.   He helps other students understand themselves and their actions, and he often reflects and strives to understand his own behaviors and needs, advocating for himself and being proactive whenever necessary.   He is flexible and creative in his thinking, and demonstrates the willingness to compromise and work with others.  William’s ability to communicate his needs and ideas to others has grown significantly.  I can always count on him to do the right thing, and I know that wherever life takes him, William Hornyak will absolutely be a positive force on the world.  

Tuesday, May 14, 2013

Senior Spotlight: Kim Wysocki



Friendly – Smart – Active – Entertainer – Funny – Strong – Sensitive


In today’s episode of Senior Spotlight, I would like to showcase student Kim Wysocki.  Kim has attended RRHS since her freshman year, and attended a few area middle schools and Union Hill Elementary School before she was a Dragon. 


High School Experience

In her junior year, Kim tried out for the soccer team.   Although she didn’t make the team as a player, she became the team manager.  Kim continued to work hard, and as a senior, she not only persisted in her position as a manager for the team, but she also made the varsity team as a PLAYER!   At the end of the season, Kim received a plaque and certificate for her dedication to the team, earned the prestigious Dragon Heart award, and was selected to the UIL All-District Academic Team.   In addition to her commitment to the soccer team, Kim was active in the RRHS Social Skills After-School and Summer Clubs, where she engaged in and led social expeditions with her peers.  When not at school, Kim enjoys fishing, going for walks, playing video games, listening to music, and creating videos.  






As a freshman, Kim’s most copious concern coming into high school was not having any friends.   That fear was soon annihilated as she now has many friends and is a “social butterfly” in the RRHS community.   The thing she looked forward to the most as a freshman was having her older sister Katie’s teachers.  As a senior, Kim dreads leaving behind her classmates and favorite teachers, but when asked what she is looking forward to, she enthusiastically responded with “no more work for me!” 




Kim says her favorite subject in school has been soccer, because she plays well, it has motivated her to keep up her grades, and she has made many friends.   Kim’s least favorite subject is English, by reason of all the work!   The most stressful part of high school for Kim has been the homework.   If she were to give advice to a freshman, it would be to stay strong and be smart.   Her advice to seniors: “Party Rock.”   The only thing Kim would change about her high school experience is that she would have liked joined the soccer team as a sophomore.  


Some Fun Stuff about Kim 
If Kim were to be in a food fight, her weapon of choice would be a slingshot.   Her hero is her previous English teacher, Mrs. Esparza, because she showed Kim a lot of understanding and compassion.   The color that describes her most is orange, because it makes her happy.  Kim says the strangest thing she ever eaten is sushi.   She is most proud of herself for standing up and being herself. 



Future
Three things Kim wants to accomplish in her lifetime are having a good job, being an athlete, and having a family.   Kim has already obtained a job at the movies for the summer and is eager to start!  Although she has been accepted into the University of Texas at Brownsville, Kim plans to attend ACC for two years and then transfer to the University of Texas at Austin.    She aspires to someday get a good job, live in downtown Austin, get married, have kids, and be a good wife and mom. 


Ms. D’s Turn to Brag
I am most proud of Kim for her courage and bravery.  She holds herself to the highest of standards, has a wonderful sense of humor, and is a true inspiration.  Kim is not afraid to be herself, and by knowing her I have been inspired to do the same.   When she wanted social relationship, Kim faced her nervousness and anxieties and went out for the soccer team.   Even though she is apprehensive of how others view her, Kim chooses to represent herself on the outside by what she feels inside, not by societies standards.   Kim does what makes HER happy, and is always eager to please those around her with her positive attitude and friendly character.    Kim takes ownership of her actions and is always seeking new ways to grow socially and emotionally.   Kim Wysocki, I admire your strength, perseverance, and heart.   I know you will change the world.   You have already changed mine! 








Wednesday, May 1, 2013

Pork and Beans





Weezer - Pork And Beans Lyrics
 -from metrolyrics.com

They say I need some Rogaine to put in my hair
Work it out at the gym to fit my underwear
Oakley makes the shades that transform a tool
You'd hate for the kids to think that you lost your cool

I'ma do the things that I wanna do
I ain't got a thing to prove to you
I eat my candy with the pork and beans
Excuse my manners if I make a scene

I ain't gonna wear the clothes that you'll like
I'm fine and dandy with the me inside
One look in the mirror and I'm tickled pink
I don't give a hoot about what you think

Everyone likes to dance to a happy song
With a catchy chorus and beat so they can sing along
Timbaland knows the way to reach the top of the chart
Maybe if I work with him I can perfect the art

I'ma do the things that I wanna do
I ain't got a thing to prove to you
I eat my candy with the pork and beans
Excuse my manners if I make a scene

I ain't gonna wear the clothes that you'll like
I'm fine and dandy with the me inside
One look in the mirror and I'm tickled pink
I don't give a hoot about what you think

I don't care
I don't care
I don't care, I don't care, I don't care
I don't care

I'ma do the things that I wanna do
I ain't got a thing to prove to you
I eat my candy with the pork and beans
Excuse my manners if I make a scene

I ain't gonna wear the clothes that you'll like
I'm fine and dandy with the me inside
One look in the mirror and I'm tickled pink
I don't give a hoot about what you think




“Pork and Beans” by Weezer is one of my favorite and most self-validating songs.  The lyrics shout to me affirmations of self.  I frequently have this song playing in the background when my students are participating in discussions, doing independent work, or playing games.  Many times we folks on the Spectrum wrestle with expectations to conform.  The unwritten rules of society mandate that we don’t rock the boat, that we follow the crowd, and that we are like everyone else.  Therefore, we strive to comply.  However, simultaneously, we passionately hunger to be ourselves.   Contrary to the precedents of the conventional social atmosphere, that means being unique and different.    

I see it every day, every which way I turn, in every place I go.  I see it at the grocery store, restaurants, malls, and I absolutely see it in the teenagers I work with.    I watch my students yearn to be like their peers.  They choose to dress like them, and aspire to do the things their friends do, but only because they have been led to believe that they SHOULD.    They create an artificial identity because they are without the perception that they are unique and wonderful as-is.  

We harbor our weirdness and oddities behind a façade of “normalcy” to the best of our abilities.   We suppress our compulsions to squeal and flap and rock.  We refrain from using our cartoon voices.  We hold back our opinions and ideas on the grounds that they might be viewed as strange.   We dress to be like others even though it is exceptionally uncomfortable and awkward.  We circumvent situations in which we could excel because we don’t “fit in” to societal expectations.     We don’t want to be perceived as being different or peculiar, so we hide. 

For the longest time, that was “me”.   I yearned to be like others, because that was what society mandated.  I joined clubs and sports that I didn’t enjoy in the interest of complying with the rules.  I censored my own voice.   As a result of my substantial efforts to fit in and my ultimate failure in doing so, I misplaced my self-worth, my tenacity was extinguished, and I asphyxiated my uniqueness.  


It wasn’t until later in life that I came to comprehend that some rules infringed upon us are meant to be broken.   I began to break out and be myself, realizing that I was the only one who could judge me, against society or against myself.  What others think of me is insignificant, as long as I am fulfilled by my choices and content with my character, and as long as I abide by my deepest morals, values, and beliefs.  All of the other clutter and chaos in life is superficial.  My hairstyle might be an expression of my personality, but it doesn’t DEFINE me.   The same with my clothes, the music I listen to, the food I eat, the car I drive, and the house I live in.  

I will acknowledge the unwritten rules of society, for the most part.  I am not stating that I am a rebel of any sorts.   I enjoy living by the rules just as much as the next Autie or Aspie, and more so than the average Neurotypical.  But I will not compromise myself to please others.  After all, “I’m fine and dandy with the me inside.” 

Friday, April 26, 2013

If Things Were Different


Imagine your life without Autism (I know, imagining things that aren’t true are really difficult for us folks on the Spectrum, but give it a try).  Explain how life for you would be different. 

This is a prompt I gave my students a few weeks back to get them to think about who they were as their character related to Autism.   So, as with anything, I will never ask my students to answer any question which I am not willing to answer myself!

Autism doesn’t make me who I am.   Yet the experiences I have had coping with Autism have woven the very fabric from which I am tailored.   Despite my struggles, I wouldn’t trade my being Autistic for the world.  I am blessed, and I am proud of who and what I am.  I am not disappointed that I am not certain things.  

Failures have more power to teach us about ourselves than do successes.   The pitfalls and misadventures of my life have coached me, and I have learned from each of them.   Every day we make the choice whether to be defined by our challenges or to grow from them.   It wasn’t until I embraced my individuality and uniqueness that I was able to truly become myself.  

Growing up, if I had known that everything I was going through, socially and emotionally, as a person on the Autism Spectrum, would lead me to be the person I am today, I would not have taken the risks that I took.  I wouldn’t have attempted all of the social interactions that most often resulted in failure.  I wouldn’t have LEARNED from those failures, and in return, I never would have become ME.  

And every day as I struggle and fail and (occasionally) succeed, I am still BECOMING ME.   I am a process, a journey.  It may be tough and unfair at times, but it is MY journey. 

So those failed attempts at social interactions, the ones you walk away from feeling embarrassed, ashamed, empty, weird, strange, hurt, awkward…don’t let them define you.  Analyze the situations, and use your experiences as a tool for growth.   Be careful not to OVERANALYZE.  But look at the closely and gather from them what you could do differently in the future.  Create the picture in your mind, but make it as broad as possible.  Chances are you won’t find yourself in the EXACT same scenario again, but if you are able to generalize what you have learned from one situation you can apply your newfound skills to another. 

Sure, maybe things would be different.  Maybe I would have been better at expressing my thoughts and ideas, have had fewer meltdown moments, and been able to relate to others.  But one thing is for certain…if I were Neurotypical I would not be ME.