Tuesday, September 3, 2013

Back to School with ASD

(Note: This post began as a message to students with Autism returning to school.  However, the focus shifted towards helping parents of those students guide their students through the process of being a high school student.  This post could also be helpful to parents of ANY student starting high school for the first time.)


Ahhhhh back to school.   Vacations have ended.  Swimsuits have been swapped for jeans and fresh new tees, flip flops with the latest sneakers.   Pencils and calculators have replaced video games, sleeping in with rising up before the sun.   Time for teachers, friends old and new, and homework. The excitement! The anxiety!  The stress!  Oh my! While back to school is exciting and fun for most, it can be an excruciating experience for those on the Spectrum. 


Unwritten Rules
Unwritten rules are perhaps the greatest source of angst for students on the Spectrum.    These are rules that are not stated (or are stated in a manner that is not clearly defined).  For example, here at RRHS we have a Dragon emblem on the floor in the Student Center.  The unwritten rule is that one must not step on the Dragon, and if one does, he or she must get down on his or her knees and kiss the Dragon.   If a student is unaware of this rule, he or she may face great social consequences from peers.  

It is imperative that we make these rules clear, especially to those entering a new campus with new unwritten rules.  Often times finding a peer who has been on the campus is helpful, as well as new student orientations.  When new student orientations are done in smaller groups, they are less intimidating and students are able to learn more. 


Unwritten Procedures
In elementary school and middle school, students were guided through procedures and routines directly.   These procedures include where to go before school, how to go about getting breakfast and lunch, how to get to the bus, finding one’s way around a big campus, obtaining accommodations, visiting the counselor, finding one’s case manager for special education services, knowing where the restrooms are, knowing the procedures for using the restroom for each class, which side of the hallway to walk on, turning in work, etc.   In high school, these routines and procedures are not always clearly stated and can vary from teacher to teacher. 

Some of these procedures may seem minor, yet their impact on a student’s school day and academic performance can be huge.  Take for example, turning in work.   The unwritten procedure may be to pass in the work at the end of the class period.  However, if a student is engrossed in an assignment, he or she may not notice the cue to pass in work.   Instead, the completed assignment gets tucked away in a folder.   Instead of getting credit for his or her work, the student gets a “Missing”, which accounts for a “0” in the grade book.   The student did not EARN a grade of “0”; he or she was simply unaware of the procedure for turning in the work.  

It is important to clarify the procedures for our kiddos on the Spectrum.   Taking students through a new student orientation can be helpful.   In addition, having students list their worrisome questions and finding a person who can answer them before the first day of school can help ease some of the worries and frustrations that often come with the first few days/weeks of school.  Asking teachers to clarify in writing their procedures for turning in work (and what to do if work is missed) can be helpful, as well as teaching students on the Spectrum to advocate for themselves by turning in completed work unprompted and directly to the teacher.   

Students on the Spectrum CRAVE and live by routine.   In high school, there are loosely defined routines.   We must teach our students how to expand upon these existing structures and create their own routines and positive academic habits at school.    Once our students settle into these routines, much of the anxiety is removed and success can blossom. 


Academic Expectations
When students first begin high school, they tend to be shocked at the amount of homework and the level of difficulty they are expected to face.  Gone are the days where teachers hover and prompt.  Students are expected to take responsibility for their own learning.   I find that most of the time our students are academically capable of being successful in high school coursework, but that there are barriers associated with Autism that hinder academic performance.   Organization skills, relationships with teachers/teaching styles, inability to self-advocate, work load, and the level of academic rigor associated with high school courses are enough to overwhelm any student. 

Disorganization murders student success.   Not being able to find completed (and uncompleted) assignments, forgetting homework has been assigned, not remembering due dates, not being able to desegregate a multi-step project, leaving important items at home or in a parents’ car, and misplacing important papers plague our students. 

To compensate for this, each of my students is required to use the same organizational system.   The system starts with a binder.  A three-ring, tough binder, preferably one that zips closed (especially for the students with sensory issues who have trouble knowing how hard they are being on their materials).   The student is then required to have one folder per class period in their binder.  Additionally, the there must be a separate folder for notebook paper and one for “My Stuff”.  

There is reasoning behind the madness of my binder system.  Our students rarely take the time to open the rings of a binder.  It is time consuming, often requires the use of a hole punch, and requires fine motor skills.   Therefore, having the rings simply to contain folders rather than to contain important papers and supplies just makes sense.   Kids are more likely to rip notebook paper out of the rings rather than to open them and remove the paper carefully, adding to the chaos of the paper nest that grows over the course of the year.   Therefore, containing paper within a folder where students can reach in and grab a sheet or two is more convenient and more likely to be used appropriately.   Having one folder per class creates a “home” for everything related to that subject, reducing time spent searching for assignments and notes.   Giving the student a folder labeled “My Stuff” allows a space for drawing and personal notes.  I never look in this folder, as I respect that everyone likes some privacy. 

The other part of my system includes a daily planner or assignment notebook.  I have taken care to create calendars that coordinate with our grading periods, list the block schedule (A/B days), list our various bell schedules (here at RRHS we have 3!) and list holidays and other important events.   Behind each calendar are daily planner sheets, where students must list assignments and activities for each class period. 

Just giving our students these tools doesn’t fix the problem of disorganization.  As with any skill, organization must be directly taught and practiced in order for it to become second nature.   When I provide this system to a student whom I am responsible for in the grade book, in order to hold them accountable for practicing the skill I grade each of the components weekly.  However, I do not always have this option.  In these instances, systems must be set in place to hold the students accountable until they become a meaningful, habitual task.   My Godson is a freshman at a nearby school, and I have set him up with the binder and planner system.  To keep him accountable, I check his materials weekly and provide him with a monetary reward that can be redeemed at the end of the month.   So far, so good (cross fingers). 

Having numerous teachers with various teaching styles can be extremely overwhelming.   Each teacher has their own unique expectations regarding student performance, their own personality that will more often than not either fit like a glove or clash violently with that of the student.    The student who struggles to relate to others and think like others will have a difficult time forming respectful and nurturing relationships with individual teachers.   Student-teacher relationships are important in that they affect a student’s ability to communicate with said teacher.   This leads to anxiety and contributes to difficulties students have in advocating for themselves in the classroom. 

Struggles with self-advocacy can hinder a student’s ability to ask for help, attend tutorials, retake tests and quizzes, and ask for accommodations when needed.   Students are often afraid to ask for help because they feel they will be appear in the eyes of others  “dumb”, “stupid”, “you should have been paying attention” or “you are incapable of knowing this on your own.”   This is especially true for populations of students who are otherwise extremely intelligent.    In addition to teacher and parent expectations, the student has high expectations of themselves.   Therefore, not knowing how to do something is not an option, and so asking for help is out of the question.  

We must directly teach our students that EVERYONE needs assistance in life, and that EVERYONE, even Neurotypical adults, must eventually advocate for themselves and ask for assistance.  NOT KNOWING IS OK.  It is natural.   We must first make examples of ourselves.  We must demonstrate in our ordinary lives that we need help.  Ask for assistance finding something at the grocery store, ask for help in loading a heavy item in your car, or ask to be seated in a quieter area of a restaurant.  People are willing to make accommodations, but we must ASK.   Have your child ASK for these things as well.  Give them the opportunity to ask for help.  

We have to show our students what it means to communicate with teachers.  We must show them what it looks like, feels like, and sounds like to ask for accommodations.  We must teach them HOW to USE tutorials.  Often our students do not know what tutorials are even for, or they do not know the appropriate questions to ask.  A good place to start is by having students attend tutorials mandatorily for a trial period.  Teach them to communicate with the teacher about their needs.  If the student is unaware of what his/her specific trouble area is, teach them to state “I am not sure where my struggle is in science but I know I do not get it.  Can you help me find what I need to work on?”   Sometimes having a script (even for our most “social” students) can reduce the amount of stress tremendously!

Work load and academic rigor.  That statement alone is enough to make me cringe.   I can’t imagine being a high school student in today’s world of technology and rigorous expectations.  We ask a lot of our students these days, but it is necessary in today’s world of innovation and competition.  We must teach our students how to handle this work load appropriately.  We must teach them to EXPAND upon what they have learned in the classroom and create INDEPENDENT LEARNERS.   This means that when our students say they have nothing to do, we directly teach them that there is always something they can do to continue their learning. 

Learning is a process.  There is no end.  Tests and other assessments are measurements of where we are NOW.   They are not measurements of our final abilities.   Every failed test is an opportunity to pinpoint areas of concern, as well as areas of strength.   We have to show our kiddos and encourage them to dig into the areas in which they struggle.   Our kids are so used to being “the best” at things.  Failure can be devastating, and for many students can really affect their already fragile self-worth.   We must foster their EFFORTS, build upon their STRENGTHS, and teach them that failure is an acceptable part of the LEARNING PROCESS when used as a tool to facilitate bettering oneself.    


Social Life
Generally speaking, kids with Autism Spectrum Disorders WANT to fit in and have friends.   While it is true that many do prefer to be alone, at the very least stands the desire to be socially accepted. 

High school does offer more social opportunities than one can imagine.   A variety of clubs and extracurricular activities exist within our campus community.   There is something for everyone, from art to sports to even zombies!   I encourage our students to find something they are interested in and take advantage of the many opportunities on campus.  Joining clubs tends to lead to relationships with peers that have similar interests. 

It seems as though for every opportunity for a student to create new friendships, there is also an opportunity for a bully to make clear one’s differences.   Bullying is a big issue in our schools these days, and children with ASD tend to be easier targets.   Buses, cafeterias, hallways, restrooms, the internet, and even supervised classrooms are Petri dishes that fester with gossip and meanness.   Kids are mean.  And bullying happens.  Kids try to fit in, to be cool, to stand out, and to increase their self-worth, and unfortunately the way they know to do this is by demeaning others and making others feel inferior.  I would like to eradicate bullying altogether.  But the fact is, I am human and as a teacher I can only hear and see so much, therefore I can only stop and rectify what I see, hear, and what is reported to me.  However, I can and do teach my students how to recognize and report bullying, and how to handle themselves appropriately when bullying happens to them.    I can be a presence in the hallways, show both bullies and victims alike that I am here and I will not tolerate it.  

What we must do for our students is teach them to get involved.   The more involved students are, the more peer-relationships and teacher-relationships they develop, the more support they have in their school day.    We must also help foster self-worth, self-advocacy, and how to recognize and report bullying.   Often when we teach our kids to advocate for OTHERS, they are less likely to become a victim themselves. 


Summary
Back to school time can be a fun, exciting, stressful, and wonderful time of year.  If our students are properly equipped, our parents have the right information, and our teachers are given opportunities to learn about ASD, it can also be a successful time of year! 

Notice I said “we must teach our students” repeatedly throughout this post.   Our kiddos are not born with these innate abilities.  Neither were we.  We learned them.  Some of us learned more easily and naturally than others.  And although it may seem as if our kiddos “get it”, often times they don’t “get it” on a meaningful and useful level.   We must face the facts that times have changed and our students will learn differently than we did.  It is not about coddling or hand-holding.  It is about making clear expectations and procedures that are muddied with the sands of the ever-changing academic system. 

Things We Must TEACH Our Kids About High School
·       The specific “unwritten rules” of their campus
·       The specific “unwritten” or “unclear” procedures for each classroom
o   Turning in work
o   Asking to go to the restroom
o   Getting accommodations
o   Introduce them to the main players in their education (counselor, AP, case manager, etc)
o   How to create their own routine within the school day
·       How to handle the academic expectations of how school
o   Using systems such as binders and planners to keep themselves organized
o   DIRECTLY TEACHING students how to use said systems
o   That EVERYONE needs help sometimes
o   How to advocate for themselves (asking for help, accommodations, etc)
o   How to RECOGNIZE when they need to advocate for themselves
o   How to forge positive relationships with their teachers
o   How to EXPAND upon their learning
o   That learning is a PROCESS
·       How to handle the various social situations in a high school community
o   Encourage them get involved by joining clubs and programs that cover topics of interest
o   To make friends that share interests and values
o   To recognize and report unwanted behaviors, including bullying and harassment

o   Foster their self-worth and emotional well-being